Marfan Syndrome - Patient Example

Example

Educational example of a patient with Marfan syndrome showing cardiovascular and skeletal manifestations

Dec 12, 2025 Updated 1 day ago
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Marfan Syndrome - Patient Example

Educational example of a patient with Marfan syndrome showing cardiovascular and skeletal manifestations

Phenopacket ID

marfan-syndrome-example-1

Subject ID

patient-marfan-001

Diseases

1

Phenotypes

6

Summary

Associated Diseases

Marfan syndrome

Phenotypic Features (showing 6 of 6)

Arachnodactyly
Disproportionate tall stature
Scoliosis
Striae distensae
Mitral valve prolapse
Aortic dissection

Metadata

Created

2025-11-05T00:00:00Z

Created By

GA4GH Phenopackets Demo

Schema Version

2.0

Subject Information

Id

patient-marfan-001

Sex

MALE

TimeAtLastEncounter

{
    "age": {
        "iso8601duration": "P25Y"
    }
}

Arachnodactyly

HP:0001166

Present

Disproportionate tall stature

HP:0001519

Present

Scoliosis

HP:0002650

Present

Striae distensae

HP:0001065

Present

Mitral valve prolapse

HP:0001634

Present

Aortic dissection

HP:0002647

Present

Onset

P24Y

Marfan syndrome

OMIM:154700

Diagnosed

Onset

P8Y

Raw Phenopacket JSON